Position of research and patient organisations – September 2016
Personal data is a vital resource for research that can save and improve lives. The Data Protection Regulation provides a strong basis for the safe use of personal data in research. Member States now have a crucial role to play in implementation. Member States should:
- introduce clear laws for research with safeguards and exemptions that support research while respecting people’s privacy;
- work across national ministries and with the research community to ensure that laws and guidance are practical, proportionate to any risks, and build on current good practice; and
- work together to promote harmonisation and compatibility between national systems where possible, to facilitate cross-border research.