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European Federation of Pharmaceutical industries and associations

EFPIA Newsletter 24 October 2019


Highlight of the week

#WeWontRest until we make rare disease even rarer

Rare diseases are far more common than you might think, but treatments are rare. #WeWontRest until no one is left behind and no one will need to tackle rare diseases alone. 




Have your say and contribute to the strategic research agenda for a Public-Private Partnership...
23 October 2019

The goal is to create a unique platform that does not exist anywhere else, a European multi-sector Partnership for health... Read more




MSD Policy Passport on Pharmaceutical Innovation (Guest blog)
23 October 2019 - Dr. Susanne Fiedler

Creating better understanding about the complex world of pharmaceutical innovation Read more

Living with rare disease: hope for the future, access today
21 October 2019 - Nathalie Moll

#WeWontRest until we make treatment for rare diseases less rare Read more




Evidence-based expertise for better policy-making
08 November 2019 (Brussels)

Expert panel on effective ways of investing in health end of mandate conference Read more

Data Protection in Health Research
19 November 2019 (Brussels)

A dialogue among policymakers, authorities, manufacturers of medicinal products and medical technologies, and other... Read more

Improving health outcomes for people with diabetes
21 November 2019 (European Parliament)

The role of data, access to innovation and integrated care Read more

Joint EFPIA & EFGCP Multi-Stakeholder Workshop on Paediatric Unmet Medical Needs
12 December 2019 (Amsterdam, The Netherlands)

The workshop will be the opportunity to exchange opinions and develop mutually acceptable criteria for joint and informed... Read more


What we are reading


Equal access to care for rare diseases
On 21 October 2019 (Friends of Europe)

Huge strides have been made in developing ways to tackle rare diseases – which the European Union (EU) defines as those... Read more

The status of rare diseases in Europe
On 21 October 2019 (Friends of Europe)

A blog from Rute Fernandes, Group Vice-President and Head of Rare Diseases for Europe and Canada at Takeda Read more

Pelosi’s drug pricing plan puts medical innovation at risk
On 17 October 2019 (STAT)

The future of medical innovation in America is at a crossroads. Read more