3-4 June 2026 | Prague & Online

The next ECRD will be held on 3 & 4 June 2026 in Prague and will be titled “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”.  

The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led policy-shaping event on rare diseases in Europe. 

By bringing together people living with rare diseases and patient advocates alongside policymakers, healthcare industry representatives, clinicians, regulators, and Member State officials, EURORDIS leverages the strength of this unique network to advance goal-driven policies that improve the lives of people living with a rare disease and their families. 

ECRD 2026 is expected to unite over 500 participants in Prague, with an additional 300+ joining online. Thanks to its hybrid format, the conference will provide an unparalleled platform for connection and collaboration, enabling participants across the rare disease community to exchange knowledge, share experiences, and build partnerships. 

Discover the programme here.

Participants who register before 26 February 2026 will benefit from our exclusive Early-Bird rates. 

Register here.