The EURORDIS Black Pearl Awards are returning to Brussels, bringing together the rare disease community to celebrate the people and organisations going the extra mile to make a difference.

Organised by EURORDIS-Rare Diseases Europe, the Awards recognise inspiring achievements across the rare disease community and celebrate the collaboration, innovation and dedication improving the lives of people living with rare diseases.

Join us for an evening of inspiring stories, celebration and connection.

EURORDIS Photo Award 2027 – submissions now open!

Share a photograph that captures what it means to live with a rare disease. Open to all countries and disease areas, the EURORDIS Photo Award celebrates the stories of the rare disease community.

Online voting opens on 1 February 2027, with winners announced at the Black Pearl Awards on 15 February.