#WeWontRest until everyone diagnosed with cancer has a brighter future

Tackling the challenges of Europe’s second biggest cause of death requires collaboration, partnership and novel approaches. That is the goal of the EFPIA oncology platform which brings together 
EFPIA member companies aiming to transform the lives of patients diagnosed with cancer.

Although more people are being diagnosed with cancer, deaths from cancer are slowing down and survival rates are improving.

New therapies, along with advances in prevention, screening, radiotherapy and surgery, are saving lives every day. The number of lung cancer patients that are alive one year after diagnosis is more than ten times higher than in 1995, when only five out of 100 lung cancer patients were alive after one year. For patients, it means more moments with family, friends and children. It means more moments to enjoy life.

The speed of medical innovation for cancer patients is unprecedented. Increasingly, therapy selection in oncology is tailored to the individual patient and disease characteristics, to improve the likelihood of patients responding to treatment. The body’s own immune system can be activated to attack the tumor. And gene and cell-based therapies provide a potential cure.

We will continue to invest in research and development to search for new ways to beat cancer and #WeWontRest until everyone in Europe can have access to innovation in cancer care.

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Health data to improve access to cancer medicines
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The oncology data landscape is fragmented and rapidly evolving, and it can be difficult to have a clear view of the area. Yet effective collection and use of oncology data is essential for diverse improvements in research, treatment, and the efficient running of health systems.

To address this lack of clarity, the EFPIA Oncology Platform has undertaken a research project on the ‘Oncology Data Landscape’. This research has included interviews with a wide range of stakeholders and experts on oncology data.

The project provides a mapping of oncology data sources and initiatives in Europe, and explores ways to make the use of oncology data more effective for patients and health systems. The overall report and narrative should help anyone looking for an overview of the situation of oncology data in Europe. The other materials cover specific aspects in more depth. And looking ahead, the project identifies strategic solutions that could help to improve the current situation.

The project comprises the following resources:

Overall report: a detailed summary of the research conducted for the Oncology Data Landscape project

Oncology data narrative: a short, overview presentation on the background to oncology data, main challenges to its use, and proposed solutions

Data sources and initiatives: summary of data sources and archetypes, use cases for oncology data, and profiles of initiatives that are seeking to transform the way oncology data is used

Barriers: Overview of barriers to the collection and use of oncology data

Trends: Identification of trends affecting the health data landscape in Europe

Strategic solutions: Gaps and opportunities in the oncology data landscape based on use cases and barriers, with three potential initiatives described in detail

Country profiles: Summary of characteristics of 10 countries in their use of oncology data