Working with Patient GroupsPatient organisations provide a powerful voice for patients across Europe. They are involved in disease education; provide help lines, emotional support, and access to treatment. They are also crucially engaged in discussions about the healthcare system. The scope of their work is expanding to include collaborations with a number of stakeholders, including pharmaceutical companies, on projects ranging from raising public awareness of specific diseases to facilitating participation in clinical trials of innovative medicines.
From an industry perspective patient organisations can provide an invaluable perspective on the development of new, innovative treatments and their use in clinical practice.
Relationships with patient organisations are well regulated through the EFPIA Code and national industry codes of practice and all financial relationships are publically disclosed as a requirement of the EFPIA code.
To know more about the EFPIA Patient Think Tank , click here.
- Working together with patients - Principles for remunerating patients, patient organisation representatives & carers get_app
- EFPIA Health Collaboration Guide 2017 get_app
- EFPIA Health Collaboration Guide 2016 get_app
- Working together with patient groups get_app
- Working together with patient groups (French) get_app
- Working together with patient groups (Dutch) get_app