Nordic Rare Diseases Roadmap - EU Launch Brussels, Belgium
01.07.25 - 01.07.25
1 July 2025 | 15:00–17:00 CEST | Brussels , Belgium
Nordic Rare Disease Roadmap to be unveiled at the European Parliament on Tuesday, 1 July, from 15:00 to 17:00.
The event will be hosted by Member of the European Parliament Stine Bosse (Renew Europe, Denmark) and Member of the European Parliament Maria Guzenina (Socialists and Democrats, Finland) and will coincide with Denmark assuming the Presidency of the Council of the European Union.
This event will bring together key stakeholders to mark an important step forward in our shared work to drive action for the more than 1 million people living with rare diseases in the Nordics and more than 30 million people living with rare diseases in Europe! The event will also set the stage for the return of the Nordic Rare Disease Summit, taking place in the heart of Copenhagen on 16 & 17 September 2025, alongside the Danish Presidency of the Council of the European Union.
The Nordic Rare Disease Summit 2025 is a collaborative initiative, uniting voices from leading patient organisations, academia, and industry. Building on the momentum of past editions, “Act 2030: Pushing Boundaries for Rare” will place patient empowerment at the centre of discussions, ensuring lived experiences drive the future of rare disease care and policy. We warmly invite you to join us on 1 July to discover the key recommendations and reflections shaping this vision.
The Nordic Rare Disease Summit 2025 is a collaborative initiative, uniting voices from leading patient organisations, academia, and industry. Building on the momentum of past editions, “Act 2030: Pushing Boundaries for Rare” will place patient empowerment at the centre of discussions, ensuring lived experiences drive the future of rare disease care and policy. We warmly invite you to join us on 1 July to discover the key recommendations and reflections shaping this vision.
Register here.
