CeBIL Annual Symposium 2021 - Orphan Drug Innovation: Needs and Priorities Virtual event

Rare diseases affect approximately 25-30 million people in Europe, including millions of children. Legal developments (such as the US Orphan Drug Act 1983 and the EU Orphan Drug Regulation 2000) were enacted in an effort to incentivise innovation. After several decades of operation, are these legal frameworks working well?

This symposium seeks to identify and explore what the most pressing priorities are in orphan drug innovation, and whether and how social science research, particularly legal research, can help meet these needs. Hosted by the University of Cambridge, an international hub for legal and scientific expertise, the event will stimulate discussion between legal, economic, business, medical, and scientific experts at a range of career stages.

Confirmed participants include:

  • Timo Minssen (CeBIL, University of Cambridge)
  • Kathy Liddell (Centre for Law, Medicine and Life Sciences, University of Cambridge)
  • Terkel Andersen (EURORDIS)
  • Jakob Wested (Danish Medicines Agency & CeBIL, University of Copenhagen)
  • Sarah Rickwood (IQVIA)
  • Sven Bostyn (CeBIL, University of Copenhagen)

The 2021 CeBIL Symposium is organised by the University of Cambridge’s Centre for Law, Medicine and Life Sciences (LML) in combination with the Centre for Advanced Studies in Biomedical Innovation Law (CeBIL) at the University of Copenhagen. The Symposium is generously supported by the Novo Nordisk Foundation.

To register to attend, visit

If you have any queries about the Symposium, please contact LML via email at



Friday, 17 September, 2021 - 14:00 to 16:30 (BST)